Tuesday, May 29, 2007

Hope...

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I was reading on some other blogs today...parents of autistic children. Sounds like some really have it rough. I remember many more trying times with Noah in the past....and I thank God that he has improved so tremendously over the last couple of years. With that being said however....I don't believe he was ever quite as severe as some of these other children sound like they might be. I am thankful for that...not because I would be disappointed in my son. I would love him regardless. I am thankful because it gives him a better, perhaps slightly easier, fighting chance at a good, productive life. And I wonder what this means for those other parents and children out there. The ones much worse. More severe. Even little spurts of improvement you grasp onto like your life depends on it.

I am not trying to make Noah sound so much better and superior than anyone else either. There are many more children not even at his level....who far surpass him. My job is to give him the best chance he's got for a future. And it is not like there is a book walking you through each step. Autism books, while helpful, could never possibly cover all the variations and degrees of its own characteristics as there are so many. While it has common characteristics among most who have it....what works for one child or adult with autism does not necessarily work for another. It is truly a trial and error, "let's see" sort of thing.

The NIKE commercial always blares over and over in my head. "JUST DO IT!" That is the best way to learn anything. What works and what doesn't. JUST DO IT. Try it and see. If it doesn't...you have to keep looking for something that does work. Something that does make that connection with your child. This provides hope...which leads to encouragement, and drive to try again. And again.

I remember Noah's first week at preschool where all he wanted to do was kneel on the floor and push his head across the floor. I remember him not being able to hold scissors or a pencil let alone a crayon....and not being able to use any of those things. He could not draw a face or trace lines or write. I remember him not being able to talk at all...he only made sounds...till he was almost 4-1/2 years old. I remember him not knowing how to walk down steps one step at a time...or not being able to peddle a tricycle. I remember him not being able to stand one drop of water getting on his shirt without having a screaming fit. I remember him not being able to touch sand let alone play in it. Same for shaving cream or finger paint or play dough or coloring Easter eggs. I remember him not being able to go to church because the crowds bothered him. I remember him not being able to go shopping because he would think everyone was staring at him. I remember him not wanting anything to do with a toilet. He was not potty trained till 5-1/2 years of age and even now....he sometimes has to have help wiping. I remember him not being able to put a coat on properly or zip it up. He still has problems with buttons and tying shoes. I remember him not wanting to go to a public park because other kids might come and also want to play. He would scream if he saw another child or people coming our way. I remember him not knowing how to swing or kick a ball. I remember him being too tired just from playing to walk back up the steps to go home. I remember so much....things I had almost forgotten about...or maybe even took for granted now because he can now DO all those things and so much more.

I list these things to offer some of those other moms out there HOPE. It IS possible for your child to improve and succeed....little steps at a time.

Today I give thanks for each little glimmer of hope.

4 comments:

Keith said...

Oh yes! Our little guy has made great strides. You are a wonderful mother and he, a wonderful son. Yes he has a long way to go, and I am positive that he will gain more control over how his environment affects him as he progresses through the next several years.

HUGS and KISSES to you Noah!...
Daddy loves you bunches.

marie6 said...

This is my first visit to your blog and I'm really glad I popped in, as my friend's son has just been diagnosed as having autism and as I like helping her out with looking after him, your site will shed some light on this for me. Thanks and as Keith just said you are wonderful as is your Noah.

Grandma L. said...

I thought you did really well with your visit to Grandma C at the rest home on Monday evening. I know Grandma C. was tickled to see you and Mommy.

Last night when I left it was around 8:15, so rather then push the door and have it buzzing like crazy I went up to the desk and asked if I could get out, it was the lady from Monday evening, she told me the code to use, which was what I had told your Mommy. She said anytime you come in after 8 or leave after 8, just punch in that code. She said that's only to keep unwanted people out after 8pm. Which is nice, as long as everyone isn't telling everyone about the code. Ha!Ha.

I probably won't go over this evening, Grandma C. seems to think I should stay home and rest, so I'll just call her. She said they really gave her a work out yesterday. I also heard her on the phone with Heather and she said yes, it hurts a lot more then I thought it was going to hurt.

I can't imagine why she didn't think a knee replacement wasn't going to hurt. Even a younger person could have told her that.

But again, Noah, you did a really good job visiting with Grandma C Monday evening. And Grandma C was happy to see you. She enjoys your visits. More later. You and Mommy have a fun day. Stay indoors where it's cool. The air is suppose to be bad again today.
Love you both,
Grandma L.

Melinda, mom of Noah said...

Yes Noah did very well. He is doing much better than he ever did.

I was going to mow...but the neighbors have apparently decided to have an entire new roof put on and I really do not relish the idea of being out there mowing when they might all be gawking. NOT that I show any skin....I look like a burn victim when I mow as I am covered completely head to toe and usually even a face mask...but..it makes me uncomfortable. SO inside we will stay....it was to be around 90 again today anyway...so maybe after they all leave this evening if I need to I can mow then. OR pay to have the mowing pastor come do it again in another day or two. IT MIGHT just be worth it...with the bad air conditions right now...it makes me and Noah both have problems with our noses, etc.

now I have given too much information!

love you mom!