Sunday, April 27, 2008

Dear Noah.........you made a new friend at school Friday...

You saw another little boy at school who had a Sonic the Hedgehog mini plushie....you seem to be drawing those children to you lately. So you naturally went up to him to strike up a conversation. According to your parapro you two became the best of friends, really enjoying playing together and having so much fun together. I am so happy you have made another friend at school!

Yesterday you were making movies on your computer. I was very impressed. You walked yourself through a tutorial on Windows and learned how to make "sprites" which you immediately then made some with SONIC the Hedgehog of course. You found some backgrounds and some Sonic images and combined them together and then made a sprite to make it all animated.

Do I have a future filmmaker on my hands? I think that is pretty impressive considering you did it all on your own and most adults would probably not even know what a sprite is (other than a soft drink)...let alone how to make one yourself!

We have not done a lot this weekend. You have wanted to do something but not really wanted to leave the house. I can't complain....I am sort of in the same mood.

I love you Noah!

Mommy

XOXOXOX



Noah made this snippet and also did his own credits and messages at the end of the clip. The last sentence I am not sure he really understood what he said. He tends to get things backwards sometimes. When he said he was sorry for the people who DON'T use guns when I asked him what he meant (since I apparently took this the wrong way and thought he meant he was wanting more people to use guns) after a long discussion he finally said what he meant was he was sorry for the people who could not use guns to help defend themselves.....he felt sorry for them not being able to help themselves.....because they don't use guns and someone else was using guns on them.

WHEW! glad I got that straightened out! This is a classic example however where a teacher let's say....might totally mis-read this and think Noah was intentionally meaning something really bad.....when he was totally innocent here and actually was only feeling bad for someone not being able to help defend themselves. It can be quite complicated sometimes in figuring out exactly what someone like Noah might mean....and he can become quite frustrated in the process of trying to explain it to me or anyone else.

Anyway....there you have it...his snippet above....in the middle......his first animation!

Friday, April 25, 2008

Dear Noah......."You are NOT shoving Sonics down your pants!"





you looked so dejected once I said no!

Yes.......that was your idea the last couple of days. That is all I have heard from you. You are wanting so badly to take your Sonic plushies to school you even try to get the teachers to beg for you at the end of the school day when I pick you up.

Then you came up with the idea the other morning that you could SHOVE them down your pants and sneak them to school. Yeah...like no one would ever NOTICE that massive bulge in your pants!

I have been telling you no.....and all the reasons WHY.....such as you might lose them...or someone will steal them..etc. All to no avail. You are relentless in your attempts to sneak them out of the house.

Today you came up behind me and said to me "do you know what I am thinking?" I turned around to find you standing with pants unzipped.....plushies in hand. As I started to say very loudly "NO!" you began shoving those plushies as fast as you could down your pants giggling the entire time. I will have to say this......after they were in there......you really could not notice it all that much....it resembled football player pads over their thighs. You were content and really thought I was going to let you leave like that......but again I said the infamous "NO!" and all the reasons why.......

You got upset.....but got over it....because I told you maybe we could buy you a T-SHIRT or two with SONIC stuff on it.....to wear THAT to school so you would HAVE the Sonics with you at school but would not have to worry about anyone taking them from you.

You were happy at this idea.....and all was well in your world again.

Until it came time to drop you off at the front door at school. Lately you have reverted back to your kindergarten days when you always felt GETTING INSIDE that front door was a race....and you were determined to never let another child pass you up or beat you into the school. We worked long and hard getting you to realize just entering the school each morning was NOT a race....and that there were always going to be other kids entering the building before you....and that all that was "okay" because in your mind it was not okay let alone acceptable and it used to trigger huge meltdowns outside the school from you.

The entire time since I have been taking you in via the front door now at your current school this obsession has recurred. Today you got rather snotty and took off running as you saw another car pull up......but you took off without your backpack...I was still holding that. I was yelling at you to come back and get your backpack......asking if you wanted to get into big trouble today.....as I approached you as you FINALLY stood right at the doorway ....trying to block anyone else from getting in....I again asked you......"are you wanting to get into big trouble today?" to which you replied, "no....I just want to be first!"

I placed your backpack on your back and off you went through the doorway.....looking back giving me a dirty look....because yes.....some other kids beat you into the building first.

sigh...........

I love you......maybe you should take up track and field events......if you like to race so fast you beat everyone else.........perhaps that could be a good fit for you?

mommy
XOXOX

Tuesday, April 22, 2008

PLAY AWAY INDOOR PLAYGROUND...A GREAT IDEA!! Check this out!








I am sure many of you have already seen this product or items like it. I know when Noah started occupational therapy and physical therapy I wanted to have a room also at home where I could install a swing much like the one they used in therapy for Noah...which is very similar to this swing you get with this product. If your child is like Noah and MUST swing to help calm down........this could be the answer.....especially if there are times when your child (like Noah in the past) does not want to venture to a park to be around other children. Back when Noah was doing his therapy......it was also during a time when he did not want to be around other kids much if at all......and I wished I had a way to have a swing installed INSIDE my home for him to swing on. We would always just try to pick a park and time it right to where there were NO other people there and once it started to have other people come and Noah freaked out we would leave. During the summer months....it became almost impossible to sometimes find places to go unless we did it very early in the day.

Noah used a swing in therapy similar to this sling swing.....but his in therapy was more like a giant sheet he would crawl into......and then he was not seen by our eyes....and he could swing.....but his swing he could also spin. AND SPIN forever.....he LOVED it and it would calm him down....he finds it very soothing. I don't know if you could buy an attachment for this product that would allow a swing to spin on this or not.....and since it has to be in a doorway the space may not accommodate spinning too.....but to be able to swing!!!!! AND INDOORS? SO cheaply? WITHOUT having to install big items into your ceiling joists and such?

All I can say is WOW! AND I wish I would have seen this product before now. SO since I KNOW there are probably others out there with similar needs and situations....I wanted to share. Of course if you all subscribe to AUTISM TODAY via e-mail you are already aware of this product because you received an e-mail about it. AND as you can tell if you go to the site and see the video clipped demonstrations....once the bar is properly installed 2 men were able to do a chin up on the bar...at the same time......so it is very secure. I guess if you wanted....you could also double it as a work out item in your home to do chin-ups/pull-ups on when your child was not using it to swing by. Your child can swing to soothe themselves.....or you can also have them add the trapeze bar to help build upper body strength. They can hang from the bar......and suspend themselves by their hands and arms.....not always the legs.....they can swing back and forth that way...Noah used to have to do that. In therapy they would stack soft blocks in front of him .....then he would grab the trapeze bar and have to HANG ON while swinging forward to knock the blocks over with his feet! GREAT fun for the kids while also doing therapy! YOU CAN DO THAT WITH THIS PRODUCT!!!!! The same things! SO many ideas and possibilities! I am going to have to get one for Noah....I know he would love it and use it a lot! I think MOST kids would like this product! I mean wouldn't you?

Anyway......you can go here to check it out..... PLAY AWAY INDOOR PLAYGROUND

Saturday, April 19, 2008

Dear Noah....you have been doing much better in school ....


as far as your behavior goes. This little snotty attitude of yours lately though is not great....though you can redirect it back to a good attitude when PROMPTED! haha

You got all A's on your report card and 1 B.......well maybe it was 2 B's......I will have to look again....

I let you stay up late last night......11:15....and the snotty attitude resurfaced. It is doubtful I ever let you stay up late again.

still love you though.....this is the start of our weekend.

and I am glad you slept through feeling anything from the earthquake...

mommy
XOXOX

Friday, April 18, 2008

Dear Noah......school dance......




Back in March the week we had the blizzard your school had scheduled a 3rd grade dance for a Friday night but because of the blizzard....the dance was canceled and they rescheduled it for TONIGHT.

You have mentioned a few times about the dance coming up..but never told me you might want to go to it. In fact I wondered what you would do if you did go because I did not think you would want to dance......I did not know if you could be OKAY on your own by yourself at a dance.....so many unknowns. I guess I forget to think you are at that age where doing things like that ...hanging with your friends even if you don't dance.....might appeal to you. I am sure you heard the kids talking about it at school today.

Somehow I found myself slipping back into the old ways of thinking when we always tried to avoid social settings such as those because your behavior was too unpredictable and you could lose it at the drop of a hat ...if someone looked at your wrong......or said something you did not like.....ANY number of things could set you off.....so it was easier to just not expose you to many social situations and added stress.

I found out today when I picked you up from school however when your parapro told me you apparently had wanted to go to the dance. I guess at lunch time you were looking really sad and depressed and was really bummed out so she asked you what was wrong. You told her "I don't have a date for the dance tonight!" And your parapro told you you did not have to have a date...you could come by yourself......but it was a pre-sale dance and the tickets had to be bought in advance and since you never told ME I never sent any money and hence you ended up with NO ticket. (The tickets came with a glow stick.......so at first we thought you might have wanted to go to the dance just to get the glow stick ticket. BUT it was not the glow stick you were interested in. You had wanted to go to the dance).

SO you got very upset to realize you were not even going to get to go to the dance.

I then found out you had a girl already in mind to ASK to the dance.....the one you have seen on the playground carrying HER Sonic plushie doll around. You zoomed in on her the first time you noticed her out on the playground with the Sonic toy (also your favorite). SO I guess you told your parapro you had wanted to ask her to go to the dance with you.....and when I asked what you were going to do there you said "DANCE!" I asked what kind of dances.....and you said "there are no set dances to dance......I would do whatever I felt like......all custom dances!"

I feel horrible. Horrible because you will miss out on this experience which is a HUGE milestone for you.....to even want to go! I know there will be other dances...and I doubt you will ever have any problems asking a girl to go with you.

BUT then I worry and wonder. Would she say yes? Would you dance silly and like a child much younger than your stated age (sort of like the kids on Romper Room) and other kids make fun of you? You are so carefree and oblivious to these things so I doubt even if they did mock you....that it would bother you or you would even be aware of it. But that is upsetting in a way too for me. I never want you to be afraid to just relax and be who you are. I am not wanting you to try to be someone you are not or like everyone else. It is good to be different! BUT I also know other kids can be cruel....and you are rapidly approaching the age where your differences will likely start becoming a lot more noticeable.....and some kids might try to torment you. That is something I wish to avoid for your sake.

You must tell me ahead of time when you want to do something like this....so I can contact the school and make sure someone will be there to help monitor you through this SOCIAL setting....because that is an area where you need the most help. I cannot just drop you off to fend for yourself.....someone would have to monitor you and this was kids only (with a few teacher/chaperones).

In the end the parapro and your teacher made special arrangements for your resource room class to have a BIG DANCE/PARTY after all the state testing is completed next week. This you are excited about now. It will give you a chance to be with the other kids in a dance-like setting monitored by your parapro and teacher. So that is good. However, you have already mentioned you want that little girl to also be there but I told you she probably would not because she was not in your class and this was just for your class. So you are disappointed all over again.

I then asked you if you had ever spoken to her on the playground. You said no. SO I told you one day next week to go up to her at recess and say "Hello, my name is Noah and I see you have a Sonic plushie! I love Sonic the Hedgehog too and I also have a lot of the plushies!" AND from there to just get to know her and play in a general way with her IF she wants to. You are wanting to play with her SONIC toy but I told you she may not want to share it and if not.....that WAS OKAY! AND to NOT grab it from her and take off with it. SO many things to go over. I hope you can make this new friend. I know most of the girls seem to love you and you them.....so hopefully it will go well.

I know you have made some friends this year in school and I am happy for you about that. I love you very much Noah.....I am sorry you missed this dance.

Mommy
XOXOX

Thursday, April 17, 2008

Dear Noah....physical therapy evaluation....

We stopped by tonight after school to the hospital's rehab center to see about getting you physical therapy finally since they now accept our insurance plan.  The physical therapist agreed you could use some therapy.   You also need some new or revised orthotics.  Your feet fall in so badly when you stand....that your leg (especially the right one) is also getting thrown off and toward the inside at an angle.....so all those muscles have to work twice as hard all the time to try to compensate...hence one of the biggest reasons you become so exhausted so quickly and have pain in your legs and feet.   Your legs are being thrown all out of whack...and the orthotics do not seem to be correcting your stance like they did before.....so it is time for a new pair or some adjustments.  This will be yet another process but we will tackle it.

Meanwhile when you got out of the tub......you turned around and saw some soap suds on the side and said to me "Mom, that looks like SPAIN!"

I am not sure how many 9-year-old kids even know about Spain let alone what it looks like...the shape of the country.   You can be so funny sometimes.

Not much new here really.  Still working on getting my parental attachment added to the IEP.  Nothing back on that yet.  Either the principal is working on it or they are hoping I forget.  I think they know by now however I would not forget something like that.  We have another IEP meeting coming  up in May ....one for next year.  So maybe we will discuss all of those things then.

Tonight we stopped by to see grandma C.  You did some puzzles with her.  Next week is the big state assessment tests you kids have to take all week long.  I don't remember taking tests like that for the entire week when we were in school in your grade but maybe we did and I just don't remember it. 

Anyway......I love you very much and can't stop rubbing your head!

P1080979

Mommy

XOXOX

Tuesday, April 15, 2008

Dear Noah....you finally let me take the pumpkins outside.....

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Yes.......here they are. Finally back outside.....where they probably should have been a long time ago. We have had these 2 pumpkins in our home since last fall but anytime I suggested taking them outside to let nature take its course Noah you had a fit. Especially with the little pumpkin which was yours in your room.

Finally a couple of days ago the big pumpkin started leaking on the floor and I announced the day had officially arrived to take them outside. You still did not want to let your little one go......but I said it was best....it had small holes in it and was probably drying up inside or would disintegrate soon. (hey maybe not....it is still fine outside).

Anyway....you agreed to let me take them out to the backyard and told me this year you would get another one........and then on January 1, 2009 you would let me take it outside so we did not keep them as long the next time.

I guess time will tell.

I love you Noah.....very much. Feeling uneasy today about you at school....not sure why. I hope and pray it is for nothing....

Mommy
XOXOX

Monday, April 14, 2008

Dear Noah: IEP meeting, hair cut, and more...

Well it's been a good week or more since I posted.

We went to the Saturn dealer on Monday to get my VUE checked and fixed. I had an O2 sensor that had gone out on it and needed to be replaced. You went with me and we spent the day together. I LOVE those days where we can take off and do things together. Here you are in the SKY at Saturn......you do look pretty good behind the wheel!

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I had your IEP meeting on Tuesday and was left with mixed feelings as usual. They brought the BIG SHOTS in for this meeting which I was prepared for....not sure if it was meant to try to intimidate me or just for their benefit to make sure things stayed cool and calm.....or maybe both. I am left wondering if this is the very best choice I could make for you at this time. While I know there have been many benefits....I see some areas that are really lacking too...and of course any mention of HOMESCHOOLING the principal immediately dismissed not wanting to hear it. I gently reminded her that I was the one who would decide what was best for YOU......it did not matter what they might want or even myself....it is what will be best for you. SO lots to think about .....but we are going to see how you do the rest of this year. I am hopeful you will be just fine and of course they all think the only reason you had such a hard time that one week at school was solely due to you not feeling well. NOT because you might have oh let's say "autism" which the biggest characteristic is the improper social skills or lack thereof.....your biggest issue recently at school at least. Most everywhere else you are doing much better. In school this past week you did very well again too. SO who knows. (the meeting started late...no surprise to me......BUT the teachers DID stay till almost 5:30 to finish up.....so that was over 90 minutes!)

You spent Saturday night at your Aunt Melissa's house to be with cousin Audrey. I decided to cut your hair before you went because it was getting very long. I bought some clippers at K-Mart and decided I would be able to trim or cut your hair the way you like it now if needed. Your aunt who normally does it has cancer and is not always feeling up to it now and we cannot always make it down to where she can cut it......so this worked out well. Here is your hair now:

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and you with your SONIC video.....

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You had a good time at Aunt Melissa's house......but I think exhausted her......so it may be a long time before you can spend the night again!

We stopped by grandma C's. house on the way home from Melissa's house where you headed for the sofa and slept for 2 HOURS! SO grandma C. and I visited while you and Opie slept. Yes.....we took Opie along also. He slept in his big cat carrier cage thing while you napped on the sofa.

This past week has been a whirlwind of emotions and semi-drama and fighting still to get you things you need. What seems to be happening now with you in school is weird. On one hand the teachers are all noticing that you just seem to FIT IN SO well with everyone else......that I think they also along the way because of this.......FORGET you have TRUE DIAGNOSES and needs.......and I think they just look for other everyday normal-kid reasons and explanations for why you do what you do sometimes that is a bit "off" from the norm. I don't know how many times I had to remind them that YES you have made HUGE progress and are doing very well....but you will ALWAYS HAVE AUTISM.........you can improve and learn to COPE in our world and live in our world so well no one will easily be able to tell there is anything different with you.........HOWEVER.......that does not mean you still learn in a DIFFERENT way and PROCESS things differently and have huge EDUCATIONAL NEEDS because of that. They cannot always just expect to swoop you into the same mix along with everyone else because I am afraid you will get lost in that mix.

So anyway.........you got all A's on your report card again this quarter........except for 1.....a B+ in that....I think the Language Arts....and I am not really sure why you got the B+. This quarter in that area you are starting out with an A......I think it has a lot to do with UNDERSTANDING the abstract......INFERENCE questions that are going along with your reading.

The STATE testing is coming up.....and you are required to take it along with everyone else.......and some allowances have been made for you to use a scribe if needed for the long answered questions......and for you to do some things verbally........and for someone to explain some of the questions to you.......

MY parental attachment I made for the IEP meeting that I wanted to be ATTACHED to your amended IEP paperwork so it would become part of the OFFICIAL documentation......of course did not GET placed with the IEP paperwork and addressed as part of the official documentation. When I pressed the principal about this....she told me she had never heard of such a thing?! WOW....I was stunned. Parental attachments are pretty commonplace I thought...and a great tool for parents to use in regards to IEP and expressing YOUR concerns to the school and staff. ...because they are required by LAW then to reject or accept your requests and state WHY on official paperwork documentation......which is something you want to have!

ENOUGH of this......this all exhausts me. I love you so very much Noah.......

you are going to be just fine!

Love

Mommy
XOXOXO

Friday, April 04, 2008

Dear Noah....you do very well.....but then slip up......


Well you said the F-word on the playground the other day at recess. Apparently you and your best friend Travis wanted to play with a ball another kid had.....but they said NO........which you called IMproper English....and then you got so frustrated and upset because they were not sharing the ball.....you told me you called them F--king idiots! You told me that night you almost forgot but that you would have INDOOR recess for FOUR days because you said the F-word on the playground to another student. I thought that seemed a little harsh and you acted funny....

Well today I found out why. I got an e-mail from the principal that told me you also tried to CHOKE the boy while you were calling him a F--king idiot! You left out that part in your story to me last night. I had you demonstrate on me what you did to the boy so I would know and while it was not actually choking it was enough pressure with your hands being pushed against my throat to make it hard for even me to breathe.

sigh........

The principal and aides worked with you and the boys to go over what was wrong about the scenario and what to do next time round. They do not give up on you and I must admit that does impress me.

so........our IEP meeting is next Tuesday. The teachers and staff at the school are working very well with you and to be honest I am amazed they have not mentioned tossing you out but instead are adamant about keeping you IN and helping you. This is new for me to hear because in Colorado they were all too quick to toss you aside in the public schools there.

However I also must pay attention to you and your needs no matter what I or the school might think and if you need a break from the public classroom or partial days or adjustments made.....so you can handle it better and receive more work on behavior and social skills......I MUST do whatever I can to help you. If it means yanking you again from public school I would do it...but we are so close to finishing this year I would really like you to succeed and finish the year out. You have made amazing progress....and are doing so well. A lot will depend on how you respond from here on out. I want you to learn right and wrong and what is and is not appropriate behavior but not at the expense of another child.

I am tired. I have had 2 online friends pass away in less than 2 months. I have work and then I don't have work. Seems all I do is sit here and try to work .....I am on call for work all the time....that is not right. And now I sound like I am complaining when I am not......I am thankful for all we do have. Your grandpa is home from the hospital too so that is good news.

So......with that being said...goodnight Noah. I love you.......but we have lots of work to do!

Mommy
XOXOXOX

Tuesday, April 01, 2008

Dear Noah.........your trip to the ER last night...

About 11:30 you flung open your bedroom door and was crying....I came running out asking what was wrong. You said you had really bad stomach pains......and could not stand up.....could not sleep. I grabbed a bucket asking you if you thought you were going to get sick. You said you did not think so. I said maybe since you ate more than usual yesterday you just needed to go to the bathroom and once you had a bowel movement you would feel better. You had already gone a couple of times earlier in the day and said you did not have to go again. You cried and cried saying you should never have eaten FOUR breadsticks at Fazoli's yesterday for lunch with your entire bowl of spaghetti...and then a piece and a half of pizza for supper. I asked if you could try standing up but you could not. You had to pee but could not get to the toilet. I had to carry you in a squatted/semi-seated position to the toilet and sit you on the toilet. You peed. Then fell back down to the floor. I told you we needed to take you to the hospital to find out what was going on inside your tummy area. You were so upset about this prospect. I sat on the floor talking with you, explaining what was going to happen and how and why. I told you I would carry you to the truck and take you to the hospital but if I could not get you in the truck in a comfortable position we needed to call 911 to have the ambulance come and take you.

I then prepared you for that since I tried to get you to the front room and you were screaming in pain. I told you to think of this as a big adventure.....and not every kid got to ride in the back of an ambulance. That this was only for the MOMENT and once these moments passed you would not remain in pain or in this state forever.

SO I called 911 and explained NOAH to the staff there and told them to NOT have the sirens and lights going (though you said maybe the strobes on would be okay). When the 3 paramedics got there they found you at the end of the hallway in a fetal position on your hands and knees.....bent way over........not able to get up.....not able to move. So the man just picked you up in that position and carried you to the cot. They strapped you in and wheeled you out.....I grabbed your shoes and jacket and got in the truck to go to the hospital. I reassured you everything would be fine and I would be right there.

Well I BEAT the ambulance to the hospital ....even though I had to drive super slow behind this other car and then it poured down rain. I registered you and was ready to go back to see you about the time the ambulance finally arrived with you. Not sure what took them so long. The doctor examined you......took an x-ray of your abdomen.....and you had stool all the way from your rectum to your stomach. No wonder you were in pain. They gave you a Fleets enema which you also handled better than most adults.....not even acting like anyone was doing anything to you.......you were able to go to the restroom once there and started to feel much better. Then once more at home......

sigh......

We finally got home around 2:00 a.m. this morning. You were excused from school again today. And finally even though this was hard and difficult for you or me....you handled it all so very well. You retained control and stayed calm. You allowed things to be done to you that in the past would have had you screaming and in fits.

I am using this situation to finally...FINALLY....did I say F-I-N-A-L-L-Y get you to EAT BETTER and healthier foods. I explained the importance of food as fuel for your body and how you NEEDED to eat some real fruits and vegetables and drink more water and exercise with me and take walks with me and today...for the first time in your entire life.......you were willing to try new foods and taste and actually even EAT some new things. You have not eaten any vegetables since you were a baby....unless one would call Ore-Ida frozen potato hashbrowns or fries a veggie. You do NOT eat any real fruit. You drink apple juice or orange juice but that is about as close as you will get to real fruit.

Today....you ate some apple slices and tasted a piece of a banana and ate some more apple slices and carrot sticks and even some LETTUCE (which you said had no taste really whatsoever and of course it doesn't)....and you drank lots of water and ate shredded wheat for breakfast and had some GRILLED chicken for lunch WITH marinade which you loved.....

I am thankful to GOD for actually allowing this experience to happen to you...to us......so we can move you past unhealthy eating into healthier eating and taking care of your body and self and life.

I love you Noah.......and am so thankful you are feeling back to yourself...even before we left the hospital while in the bathroom you started giving me the low down on the toilet.

I love you very much....even if you are full of shit (sorry.....had to say that!)

***Meanwhile please keep grandpa L. in your thoughts and prayers as he is still in the hospital with pneumonia and blocked heart arteries. AND our aunt....as her lung cancer has also spread to her brain now. ***

Mommy

XOXOX

Monday, March 31, 2008

Dear Noah....trip to Versailles....

We took a trip to Versailles on Sunday to check out some houses and the village/city itself......and we fell in love with it.  While there you also pointed out all the train crossings and signals so we went "rail fanning" as you all call it.  I took many photos of the train crossings and lights and BELLS and signals and you posing with the train crossings... but at the very FIRST crossing signal we went to after taking your picture you thought you heard or saw a train coming and sure enough.......one DID!  You said it was an EXCITING DAY and were so happy you were SO UP CLOSE AND PERSONAL to see and hear the train and see the signal crossing gates come down and the bell clang.   Here is one of many photographs taken from yesterday....we ended the day at your aunt Melissa's house where you got your fill of their Sonic the Hedgehog game.....where you also ended up with a headache...again looked very pale.......withdrawn...all signs of over-stimulation again....so home we went.   I let you stay home today from school to RECOVER.....and next will be a trip out for lunch at Fazoli's.  Right now you are busy making movies in your room using Windows Movie Maker.   I received an e-mail message back from your principal.....and I sent some e-mails back.  We are to meet for an IEP meeting on April 8....she allotted an entire 30 minutes to our meeting...which I propose will never be long enough and of course she scheduled it for when I pick you UP from school which means you will be present during that time.  I believe that was done on purpose.  I am going to prepare an itemized LIST of the things we need to address in the meeting AHEAD of time and express my concerns for sufficient time to discuss these issues and they better NOT try to come back and tell me they do NOT have the time to go over all these issues.  They MUST MAKE the time then.   BUT enough of that for now.......the ongoing FIGHT to get APPROPRIATE things in place for you to learn not only academically but socially continues.  I guess it never will go away or get any easier.....although I do become smarter and learn more ways of how to handle these things.  Here you are.....on one of your BEST days ever!  (you also got a souvenir Sunday when you found an old piece of a red light from one of the RR crossing signals.......you were delighted!  I love you Noah.....so very much!

 

Mommy

XOXOX

P1080821

Watch AUSTISM THE MUSICAL at the link below for free

http://www.hbo.com/docs/programs/autism/video/

Thursday, March 27, 2008

Dear Noah....a slight regression continues....

Noah's first artwork I have seen him bring home....something pertaining to Vincent Van Gogh's Starry Starry Night.  I have no idea what their assignment was but according to his scores he did very well.  P1080723

 

For the fourth day straight  I believe I have picked you up from school only to hear you had a bad afternoon.  Today you got into a pushing/shoving match with another boy in gym class....and while he started it and you ended it by pinching him......you both got sent to the principal's office.  

While in social studies class you got upset about something and the teacher felt you needed to go to the hallway to "calm down."  A good idea but he did not provide a chair for you or a desk and there was NO MONITORING of you while in the hallway.  He told you to sit on the floor.  NOTHING constructive was given to you to GUIDE you through calming down.....NO ADVANTAGE was taken of that moment to TEACH you something..like the CORRECT response out of you in a trying situation.   SO did you remain in the hallway like the teacher expected you to?  NO!!!  You did exactly what I have been warning them you might do.  YOU WANDERED off....left the hallway......went somewhere else entirely to sit down. 

You got upset with your aide this week and wrote on your paper you hated her.   I SEE RED FREAKIN flags all over the place. 

Today I saw the all too familiar zombie look on your face and body postures again.  You were very pale......and looked sad......almost mad too.  Like you had a headache but you did not.  It was all you could do to make it to my car......you could not even carry your backpack.  ALL these are signs you are being too stimulated at school.  TOO many things are happening to set you off....you do not appear to be receiving proper instructions on what to do in social situations when they arise....etc. 

I do not like many things happening here and not happening here.  I have asked for an IEP meeting and it has been canceled twice.  I was told last week it would be rescheduled again.  I am tired of waiting.  I have told the principal you will NOT be returning to school until we get these issues resolved and written up in your IEP and that they have to be followed.   I sent this e-mail to your staff tonight.  WHILE very long I think (hope) I made my point.

 

Dear Principal _______:

For about the 4th day now or more when I have picked Noah up from school I am finding out he has been into trouble for blurting things out, hitting another student, etc.  When I see him in the afternoon he is very pale and acts like his head hurts and he is super tired but of course he has no headache.  He looks withdrawn and sad...sometimes almost mad.  I recognize this "look" as a sign he has been too stimulated.......over stimulation causes Noah to act out......it also causes him to become basically a walking zombie for a period of time of recovery.  The duration of his recovery varies depending on the amount of stimulation and his body's response to it.  He has learned to recover a little quicker I think than he has in the past but this week I have noticed he is not bouncing back so easily.  I have to say this has been very disturbing to me.....because it is a sign of REGRESSION.....and while he is making progress......too much of this type of behavior if repeated on a consistent basis time and time again, does NO one any good.....especially Noah.  He will go further BACKWARDS instead of forwards.   This is also about the time of year he becomes very stressed.....almost like he has had his limit.  It is very touch and go with him.  He loves school and wants to come and be there...BUT at the same time he also is having a difficult time handling the entire day!

Another bigger concern of mine is the fact that Noah has been sent to the hallway for a "time out" or to "calm down" a few times this week.....WITHOUT a monitor.  Today he was sent to the hallway from Mr. Winner's class and there was not even a chair for him to sit on.  NO teacher monitored him.....no desk was there for him....and he was not given something constructive to work through to help him calm down.  I am FURIOUS about this.....because what happened?  Exactly what I have warned everyone about from the start.  Did Noah remain where he was supposed to remain?  NO.   He left the hallway....and wandered off.  I have a CALM DOWN book I can make a copy of for Noah to keep at school that he can be given to work through to CALM down when sent to the hall.  BUT HE BETTER NEVER be sent to the hallway ever again without a chair and a monitor.
I do not know what I have to do to express my concerns about this.  Noah has a reputation for wandering off in the past.  I do NOT want to get a phone call from the school staff one day saying Noah is MISSING and cannot be found and you have NO idea where he is!   There is NO excuse for this.  NONE.  NOT with an autistic child and one with an IEP and aide. 

I have said time and time again Noah needs to be monitored.  I don't mean part-time.  He needs an aide/COACH and monitor pretty much all the time.  NOT just someone to help explain things to him academically.....but also SOCIALLY.  WHAT IS and IS NOT acceptable behavior and WHY.  To coach him through standing in line........taking turns....all the stuff other kids his age already know.  Noah is not emotionally equivalent to the other 9-10 year olds in his class.  His emotional level is more along the lines of a 6-year old......and that is pushing it.   I have been told his aide is not just his personal aide but she has to split her time with other students.  Then I have to say the school needs to hire someone else to fill in for her time so she can be his full-time aide because he needs one.  With his disabilities listed on his IEP he is more than qualified for this and is allowed this.  The monies for this is also there. 

I have already decided to keep Noah home from school tomorrow Friday March 28.  He needs a break.  I am not going to stand by and watch all the hard work I have done with him over time deteriorate right before my eyes because he is constantly being thrown into situations where he is not yet able to handle them.  He does not understand CONCEPTS at all.....I think the staff already knows this.  He does NOT understand the WHYs of just about anything.   He has a very hard time understanding many things.  

I am not comfortable with having Noah return to school until we can get these issues resolved.  I asked for an IEP meeting to address my concerns which are growing instead of being alleviated.  I understand we have had to cancel because of the weather and I think Noah was sick one time.  BUT we need to get that rescheduled ASAP.  However....once issues are WRITTEN down and included in his IEP (if they are)...they NEED TO BE FOLLOWED.  The IEP does not exist for my peace of mind, only to be filed away in a filing cabinet to LOOK like everyone covered their butts and followed proper protocol.  The special needs are written down to HELP Noah succeed and do the best he can.  We must all implement what is in the IEP. 

Noah is to have a scribe for those times when there is a lot of writing required in the classroom......tests, quizzes and such.  We really need to ensure this continues to happen and he is not left struggling to write answers out and becoming so frustrated with the action of attempting the writing itself he cannot answer the questions at all or complete an assignment in the classroom.  He brings home a tremendous amount of homework......and with limited time to do it at home becomes frustrated even more then.  It is becoming a little too much for him. 

I have asked for help with writing......something he could use to TYPE answers on......etc.  NOTHING has been done about this that I know of.  I do know there are tools out there a child can use in the classroom that has difficulty with writing...so they can type their answers and responses in order to KEEP UP with the rest of the class.   Noah has come a long way with writing and I still want him to learn.....but it is becoming frustrating for him when it comes to classroom assignments and homework assignments if he has to do all that writing. 

Noah should NEVER be allowed to be in ANY classroom with other children UNattended.  NOT EVER.  You are asking for trouble.  It only takes a second for someone to even look at him the wrong way and he can be off and slamming the kid up against the lockers.   I believe this situation has changed recently and now the kids are finally MONITORED during indoor recess inside each specific classroom.  THAT IS a HUGE concern of mine.  INDOOR recess without a teacher in the classroom?  TWO walking around in the halls for the ENTIRE school is not proper monitoring of children.  There is no way one can know what is or is not going on in the classroom.

ALSO many times when Noah does get into trouble.....like today for instance in the gym......while NOT an excuse for his behavior....he also did NOT start the pushing and shoving match.  However Noah many times FAILS to tell a teacher.......or cannot get out HIS story or what happened quick enough for  an adult or teacher.  He does not think to TELL a teacher "HEY someone is PUSHING ME" first........he reacts first and does not ever mention it to the teacher.  I have told him for YEARS to tell the teacher if someone is pushing him or being mean to him.  He never remembers to do that.  SO he is the one that usually gets caught and then blamed for the entire thing.  Today Alex or Alec pushed him first Noah said.....and then they pushed each other back and forth and finally Noah PINCHED him......and then Alex told the gym teacher.  Noah should have told the gym teacher at the start "HEY ALEX is  pushing me!"...But again MY question is WHERE WAS the teacher during all this????  It sounds like he was right there as the kids were in line for some event in the gym.   WHY DID THIS ALL go un-noticed by the teacher and why did he not tell the kids to stop it?  WHY allow things to escalate?

I am sorry this is so long but I am very upset.  This all reminds me of how things used to be in the past for Noah.  Only multiply the behavior you have seen recently by about 50 x and you can get an idea of where he has come from. 

So we have to fix this ...or at least try.  We have to make some serious changes in his IEP.  He HAS to have a monitor.  He is not ready to be alone anywhere.   I am NOT going to allow him to WALK on any walking field trips unless someone can guarantee me he will have one supervisor solely for him alone all the time while out.  IF NOT......there is NO way he can be allowed to go.  I heard during the choir practice at Memorial Hall that the kids were to have PLENTY of adult supervision....and yet while there one little boy was grabbed by some unknown man.  I cannot tell you how this made me feel to hear this.  Noah was sick and missed it.  I am thankful.  Because had he been there and was not being monitored he could have easily been coerced to go somewhere with someone he should not have. 

I also do not like dropping Noah off in the morning outside school and just HOPING and praying he makes it to his class. I HAVE NO WAY OF KNOWING if he even gets to where he needs to go in the mornings.  I DO NOT LIKE THIS.  This is not acceptable.   Someone needs to walk him in.  If that be me I am fine with that.  I can walk him in.  I can bring him in the mornings and take him to his class...something.  Or an aide can come and meet us.  BUT to always just think he will do what he is expected to do is flat out wrong.  NONE of us can just assume that.   Today with him leaving the hall where he was supposed to remain again confirmed this to me.  Someone brings him to me in the afternoons after school.  That is great.   I have been bringing him to school a little later in the mornings to AVOID line up outside......as I have watched in horror all too many times kids pushing and shoving each other around.......all time bombs waiting to go off for Noah.  If someone accidentally pushes him or pushes him on purpose........there is no guarantee he will not lose it.  Same for him just observing others horsing around.  He will mimic it.  Again the monitors.......where are they?   I have seen some now.......since we talked about this the last time....they are there.  More than before.  Rarely however do they stop the kids from horsing around. 
Outdoor recess time I have no idea what happens.  When I take Noah to a park for example I DO NOT let him wander off and play with other kids alone.  I am along the sidelines.......watching.........ready to intervene and redirect when needed.  I already know this is not likely happening on the school grounds. 

SO as you can tell I have many concerns.  Noah seems to be doing poorly in the classroom...and we need to figure out why and fix that.  I am not in the classroom so I have no idea.  To me however I think it sounds like he is getting over stimulated and has no way to compensate for that during the day.  It sounds like he is getting frustrated.  Sending him to the hall to calm down can work if someone is there to guide him through calming down....and monitoring him.  To keep him on track.  However isolating him solely because he continues to disrupt a class and that removes the disruption from the room but he has nothing constructive to do in the hallway does no one any good.  Especially Noah. 

SO please talk and let us set up a new day and time for this IEP meeting so we can make some revisions and updates and try this again. 

Again I will call in the morning but I am not sending Noah to school on Friday March 28.  I can already tell tonight  he will not have a good day tomorrow either.  I am not setting him up for failure or expecting the worst.  I just have enough firsthand experience to KNOW how things are going to be based on his appearance and behaviors even here at home.  I would love to be able to trust him to always do what he is expected to do.  However I learned a long time ago he can unfortunately rarely be placed in that position and always do what is expected of him.  He has to have a monitor.  Have I said that enough?  Because I don't think I can say it enough or express how serious this can be without a monitor. 

Let me know when a good date and time is.....I can flex my schedule accordingly.

Sincerely,

 

________________

 

Noah I am determined to do everything I can for you to become the most lovable, caring young man possible and one who can learn how to handle himself in most situations with greater ease.   I will not stand by and allow you to go backwards because of being steered in an improper direction.  I will get you back on track....one way or another. 

I love you very much Noah.  Forever I will.

Mommy

XOXOXOX

Tuesday, March 25, 2008

Dear Noah: a trying past few days....

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On Monday the day after Easter I knew you might have a harder time because it was the day after a very over-stimulated day. You had an attitude and looked like a "walking zombie," sort of tired looking, not really present but somewhere else. When I tried to bring you back into the moment you got pretty snotty and withdrawn.

You had a hard time at school. Your friend Travis had returned from a vacation and you were happy to see him at recess. BUT you also apparently did not want to share him with anyone else so when another little boy came up to play with Travis too, you got upset. Now apparently from what the teachers have said, this is also a boy who can cause some problems so their first thoughts were you were trying to protect Travis. You apparently decided to kick the boy in his crotch. The boy fell to the ground. NOT because you were protecting Travis but because you did NOT want to SHARE Travis with anyone else. Of course you got into trouble...the teachers and staff handled it correctly explaining to you that was not the proper response and why. You apparently handled it like an adult they said and took your punishment well, etc. They went over what you SHOULD have done so hopefully next time you will stop and THINK about what you should do and choose the correct response rather than just being impulsive and lashing out.

To top off that day you went to your REWARD party for successfully completing this quarter's Monday after school social skills classes. The counselor there had promised YOU to make you special Pillsbury Chocolate Chip cookies for YOUR special treat. The 2 other kids who earned attendance to the party wanted ice cream. When I picked you up from school you started crying, already worried this counselor would not come through for you and do what she promised and NOT have the correct cookies. I could not blame you as this has happened so many times in the past. SO I ran you out to grab a quick bite to eat from Wendy's. While sitting in the car eating and waiting till the party was to start I asked you what you would do if the counselor did not make the cookies she promised and tried to substitute something else (trying to prepare you for the worst case scenario and coach you on a good response and outcome). You said you did not know. I suggested you just drink some water or something else they might have to drink and focus more on any ACTIVITIES they might have for you 3 to do. I went in with you and sure enough there on the table INSTEAD of the Pillsbury cookies was a bag of Chips Ahoy Chocolate Chip cookies and Oreos. I saw you glance over there and immediately looked like you could have cried but you didn't. You did look totally disappointed and like you wanted to say something but you did not. I stood there and said to you " I know....I know.....but it will be okay....you have something in your tummy now to hold you over and when we get home I will give you your cookies and some milk." I left watching you stand off to the side by the windows not really knowing what to do. I could have screamed at this counselor...who obviously does not have a clue when it comes to autistics and their true NEED for routine and sameness and someone to KEEP THEIR FREAKIN' word when they make a promise. I am so tired of people thinking they can easily SUBSTITUTE something else for you and you will just easily accept it or eat it or welcome it. It just does not work that way with you. In the past this situation would have ended in a horrible meltdown by you so you have improved tremendously. Part of this I am sure is just growing up......part is learning the proper responses in specific social situations. How to handle disappoint appropriately...etc. This time you did as I suggested. You drank water....and I am sure felt a bit singled out again and not really part of the group......but you focused on the games you all played which this time you got to actually play POOL on a real pool table which you loved!

When I picked you up however, you acted very odd. Very down and semi-depressed. I asked you how it made you feel to see the wrong cookies on the table. You said it made you feel a little sad...but then went on to talk about how great it was playing pool and how you wanted a pool table of your own. You were pretty withdrawn the rest of the night and homework was a bear.

The last 2 mornings for breakfast you wanted your usual Ore-Ida hashbrowns. You smell them and say they are different. You taste them and then cannot eat them. I do admit they do look different, smell different and even taste different. They are flatter and are mushy and not crisp when you get them out of the oven. I imagine somewhere along the way they thawed out and then the stores refroze them. I had to toss 2-1/2 bags in the trash today because you refuse to eat them. While this is extremely frustrating sometimes because now that is ONE less thing you will probably even try to eat for awhile...I also understand it.

Tonight I myself am frustrated. So much crap. I am tired of people saying they are going to do something and then NOT do it. Especially when it comes to you. That is just wrong no matter how you try to look at it.

I love you very much Noah.

Mommy

XOXOX

Monday, March 24, 2008

Dear Noah......Easter morning 2008

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You got up super early to see if the Easter bunny brought you anything....and you were thrilled to find a GIANT basket on the kitchen table filled with exactly what you were hoping for.....all your Sonic the Hedgehog PLUSHIES!   Since you were up before sunrise I grabbed my Bible and we read the story of the empty tomb to start our Easter morning.   I will post more later....but just to let everyone know...we had a very nice Easter.

I love you Noah!

Mommy

XOXOX

Saturday, March 22, 2008

Dear Noah....

You have been doing pretty well lately although you have also been having a lot more episodes of what I would call "an attitude!" I know some of this is your age.....and unfortunately a lot has to do with the other kids you are around during the daytime. I know in our entire lives we cannot always pick and choose who we might have in our living environment or world.....but then again I think yes we can. The reality however is we can control it to a point .....but there will be times you may be around others (what I might call "less desirables") who might talk in appropriate manners and do inappropriate things....all things you have to learn NOT to mimic just because they are doing it and you think certain words might sound funny to repeat (not understanding what some might actually mean), etc. I know this is also all just part of growing up.

Distinguishing KILLING in a PC Game from KILLING and death in real life....the F-word.....being snotty versus showing respect......all things you are learning about now.

I have to admit the job was much easier for me and I was able to mold you more perfectly into being a very nice, well-mannered, polite, loving, respectful child when I homeschooled you. Because I was more easily able to monitor those you were around here at home or in your environment.

We parents of autistic children always get slammed with pressures of our kids needing the SOCIALIZATION aspect of life...and to be honest......homeschooled kids can get great socialization.

I understand one day you will be in the BIG world and it is also best to prepare you in how to handle that type of exposure with those types of people and situations......but sometimes with your emotional level being only around the age of 6......I think 9 years of age with that low emotional level is sometimes too early to try shoving you into the world for exposure in all situations. You just do not really understand many of them.

I know some of you readers out there will say to yourselves that this is something all kids go through and it is part of growing up. I understand that and agree. However with an autistic child they do not so easily grasp the CONCEPTS of these issues. It takes constant repetition of enacting the same situation over and over for them to finally hopefully one day have their lightbulb moment and GET IT....something most neurotypical children grasp much easier and quicker. It seems instinctive for them but not for an autistic child.

So as usual we do have our work cut out for us but I know you will do well. I do constantly wonder however if you would not be doing better homeschooled again than you are now. I don't know. I want a mix sort of in between for you I think.

I love you.......here are some recent PC drawings you did of your favorite Sonic the Hedgehog characters.






And as you can tell about the last one......you do NOT understand the concept of KILLING and all it means very well at all. CLICK ON PHOTOS TO ENLARGE

sigh.....

I love you Noah......

Mommy
XOXOXOX

Wednesday, March 19, 2008

my first day of school...

Did you know 90% of flu vaccines contain mercury???

Did you know the flu vaccine contains mercury?  At least 90% of them do. 

 

A recent survey revealed that the overwhelming majority of Americans were unaware that most flu shots contain mercury and that they would refuse a shot with mercury. (See page two for the key findings.)


"More than 75 percent of Americans feel a mercury-containing flu shot should not be given to a pregnant woman or a child, despite recommendations from medical authorities to do just that," said Lisa Handley, a founding parent of PutChildrenFirst.org. Her own son, Jamison, had an adverse reaction to a flu shot containing mercury in 2003. "I know firsthand how life-changing a flu shot with mercury can be, since our son began his regression into autism after his flu shot."

In 1999, government agencies called for the removal of Thimerosal, the mercury-based preservative in most vaccines. Then, in 2001, the American Academy of Pediatrics stated that, "mercury in all of its forms is toxic to the fetus and children, and efforts should be made to reduce exposure to the extent possible to pregnant women and children as well as the general population." Despite these actions, 90 percent of this season's flu vaccines still contain Thimerosal, and the Centers for Disease Control and Prevention (CDC) are recommending the vaccine for pregnant women and children six months and older.


These recommendations come on the heels of recent studies that reveal new findings about the neurological effects of mercury and question the effectiveness of flu shots. Mercury, the second most toxic element after plutonium, is estimated to be 500 to 1,000 times more toxic than lead.


"A common myth is that Thimerosal is added to vaccines in 'trace' amounts," said Mike Wagnitz, who has over 20 years experience evaluating materials for mercury and is employed as a senior chemist with the University of Wisconsin. "The concentration of mercury in a multi-dose flu vaccine vial is 50,000 parts per billion. To put this in perspective, drinking water cannot exceed 2 parts per billion of mercury, and waste is considered hazardous if it has only 200 parts per billion. Is it really safe then to inject pregnant women, newborns, and infants with levels of mercury 250 times higher than what is legally classified as hazardous waste?"


Agreeing that mercury has no place in vaccines, seven states have passed Thimerosal bans in recent years: California, Delaware, Illinois, Iowa, Missouri, New York, and Washington. California is the first to have implemented the ban for the current flu season, but Governor Schwarzenegger temporarily overturned the ban on November 2 after a shortage of mercury-free flu shots led to pressure from state medical groups.


"Parents need to be informed about all aspects of their children's healthcare, including vaccines," said Deirdre Imus, President and founder of The Deirdre Imus Environmental Center for Pediatric Oncology at Hackensack University Medical Center and co-founder and co-director, with husband Don Imus, of The Imus Cattle Ranch for Kids with Cancer. "It doesn't make common sense to inject Thimerosal, a known neurotoxin, into the bloodstream of our babies."


This fall, two studies were published in leading medical journals admitting that limited data exists to support the effectiveness of flu shots. One study, in the Journal of the American Medical Association, noted that, "there is scant data on the efficacy and effectiveness of influenza vaccine in young children."
"So, not only is the flu shot's effectiveness in doubt, there is plenty of evidence revealing the devastating effects of mercury," said J.B. Handley, Lisa's husband and a founder of PutChildrenFirst.org. "Our health authorities are not being forthcoming about mercury's presence in shots and its toxicity to the nervous system. Our children deserve better."


"With everything we know about the dangers of mercury and the havoc it can wreak on young, developing brains, there is no excuse for any vaccine to contain mercury," said Lyn Redwood, RN, MSN, President of SafeMinds, a nonprofit committed to ending mercury-induced neurological disorders. "The survey reveals that Americans are overwhelmingly in the dark about what is in most flu shots. They do not want a known neurotoxin injected into their children, and they believe Congress and medical professionals must be more vigilant about keeping vaccines safe and mercury-free."


Key findings from the poll, conducted October 27-30 by Zogby International, include:
* 74 percent of respondents are unaware that most flu shots contain    mercury. 
* After learning that mercury is an ingredient, 74 percent are less likely    to get a flu shot and 86 percent of parents say they are less likely to    get their child a flu shot. 
* 78 percent of respondents believe mercury should not be an ingredient in flu shots given to pregnant women and children. 
* 73 percent believe the government should warn pregnant women not to get a flu shot if it contains mercury. 
* More than 70 percent agree that Congress, doctors and medical groups (e.g., the American Academy of Pediatrics) should take responsibility for ensuring that vaccines do not contain mercury. 
* 80 percent of respondents and 82 percent of parents are willing to pay the $2.50 additional cost for a mercury-free flu shot.


PutChildrenFirst.org is a parent-led initiative advocating vaccine safety and a division of Generation Rescue, a nonprofit organization providing parents with information on the relationship between mercury and its relationship to Autism Spectrum Disorders. Generation Rescue gives parents information to make informed decisions about treatment options and physicians. Generation Rescue is a 501(c)(3) nonprofit founded in 2005.

Dear Noah: You are feeling better....

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You have had a rough time of it lately.  I took you back to the ER/After Hours Clinic and you had no fever but swollen neck glands.  Throat was fine....chest was clear....but the chest x-ray looked the same as before.  However the radiologist felt the chest x-ray was normal...while the doctor thought it had bilateral early infiltrates.  So if the doctor is correct then the chest x-ray is still the same, one would have to believe you have not yet completely cleared the pneumonia.   You have nose/sinus issues so they put you on a 10-day antibiotic course....a different kind.   As of yesterday 2 days into the course I could tell you were feeling better.  You were staying home per their instructions and as the day progressed  you became more yourself. 

Today you go back to school.  This was to be Spring break the week you had off from school but because of all the snow days, you will have to make them up so you all have to attend school this week.  NOW they even added GOOD FRIDAY back to the list of days you have to attend.  I think that is pretty crappy.....and now I find out they will allow the students to go home 2 hours early on that day.   Hum.......

Otherwise the birthday parties on Sunday we attended for your cousin and aunt went very well and we all had a great time. I think part of the reason you were so worn out on Monday was all the over-stimulation from Sunday. 

Anyway....I have to get back to work right now.  You are still sleeping....and I love you!  By the way.....you were a trip in the ER.....talking very maturely to the doctor and describing your symptoms yourself....more later.

Love you! 

Mommy

XOXOXO

Monday, March 17, 2008

Another very disturbing reality.....

This young man has Asperger Syndrome, was lied to by police, and not provided his rights as a person with a disability, as a juvenile, nor as a suspect.  The videos of this interrogation are hard to watch, but this is something the family has shared to allow others to see what damage can be caused by incidents of this nature. 

The videos are available as well as this on the Detroit Free Press website.  It is also interesting to see how the public comments to this story.

The family in this case will now try to pick up the pieces of their lives and move forward.  But the harm caused to everyone involved will take many years to repair.  I am not personally saying that this case should not have gone uninvestigated.  However it should be learned from and people should use this as an example of what can happen as well of how appropriate protocol and understanding of ASD needs to occur.

You can go here to watch the video clips....again this is very disturbing and shows how easily our children with autism can be manipulated.....in many ways...good or bad....and how some so-called professionals in reading body language and behavior like this so-called policeman doing the interrogation.....need to take a course in AUTISTIC characteristics and behavior..because he obviously has no clue.  The entire way this was handled was beyond poor.....and should be scary to us all!

 

http://www.freep.com/apps/pbcs.dll/article?AID=/20080316/NEWS03/80316001

 

Meanwhile Noah's meeting was canceled today because he came home from school early.....sick.  I am going to have to take him to the After Hours Clinic and have him checked out again.