Wednesday, June 17, 2009

Dear Noah.....your cardiology followup.....




Was Monday afternoon at Children's Medical Center. Your bicuspid aortic valve is about the same and the stenosis there is about the same; however, the leaking (aortic insufficiency) has worsened a bit. So the cardiologist is more worried about that right now than the stenosis or aortic valve itself.

You are going to have to go back in 6 months for another echocardiogram to see if it has worsened again or stayed the same. We will then go from there. I won't get into a lot of details now about things but you may face open heart surgery one day unless they can come up with a new way to do a couple of the surgeries you might one day have to have done. If it has worsened in 6 months we will start checking into options....and it sounds like they would try you on some medication first. BUT I would have to really do some research even on that....the long-term side effects...etc...before ever agreeing to something they could probably just go ahead and fix and get it over with. Time will tell. You did well but cried throughout the echo as you had a sore chest and stomach from swimming at your Aunt Angela's house Saturday night. You apparently fell on the concrete and hit your chest and stomach. Here I thought you had hit your knee.

We have been pretty busy so far this summer. I have not yet even had time to come up with a schedule for school work and field trips for summer and as fast as the months are going by I better get to it or summer will be all over before we know it!

We went to your Aunt Angela's to swim Saturday night and to see her new apartment. We had a really nice time there.



We have stopped over to see grandma C. We stopped in to see Audrey and Grandma and Grandpa L. on Monday on the way home from your cardiology appointment. Then while at Grandma C's house we got a call to come to the hospital as my aunt was there in really bad shape (she has cancer in her lung, spine and brain and now pneumonia and other infections). So we took grandma C. to the hospital and called some other family members to be there too. You did very well..being very quiet as she was in the ICU. You did entertain yourself a couple of times by going into the bathroom off the side of the ICU Waiting Area to flush the men's toilet. So there we all sat talking and every so often we could hear a "SWOOSH!"

You were exhausted by the time we left which was almost 2:45 a.m.!

We saw a gorgeous moon on the way home so we pulled off to snap a few.....



Yesterday we stayed home and rested up a bit...same today. I will have to mow soon. We will need to water the vegetables tonight and give the animals fresh water and seed.

I love you Noah.....As usual you have made some very amazing comments over the past few days and because I got behind and did not record them right away or jot them down I hope I can recall them to post here soon.

Meanwhile...I love you a lot.

Mommy
XOXOXO

OH! YOUR SCHOOL progress reports and tests! You are doing amazingly well. I will post your scores later...but you took the test for 4th grade and were in the ADVANCED level on Math and Reading...so I am less worried or wondering how you are doing now!

5 comments:

Betsy said...

Wow...great progress reports for school! That's wonderful!

Will continue to pray for you and Noah and all the upcoming decisions regarding his heart.

Patty said...

I hope and pray all turns out for Noah, and it could somehow heal it's self, but I guess that's wishful thinking.

Would imagine you were both exhausted Monday night (rather Tuesday morning).

His progress reports sounds like all is going well. He's got a great teacher. Love you both.

Melinda said...

thanks Betsy!

Thanks mom...Love you too. And no it is not wishful thinking. God can do amazing things and there is power in prayer and belief...faith. He ended up not having to have his first surgery for his other issue...so it is always possible he may be able to avoid this too if his valve would start working a little better in there.

KC's Blog said...

Way to go Noah! You are amazing! You have an amazing teacher, your Mom is awesome!
4th grade level wow! You are an inspiration:)

Melinda said...

yes he was in fourth grade this year....but still doing 3rd grade math (review) and 5th grade language arts...so he should have scored well on 4th grade testing. BUT I was surprised HOW well. I was wondering how he would do on 4th grade MATH since he has not yet started that. BUT he did very well. SO we both feel much better. He will be in the 5th grade this fall.....but doing 6th grade language arts and reviewing 4th grade math before moving in to 5th grade math. Confusing I know!